Patient and Public Involvement

Where are we going with Patient and Public Involvement?

With the Big Society the talk of politics at the moment you could believe that Patient and Public Involvement, (PPI) is on the up.  However the debate around what actually makes a ‘big society’ is an interesting and challenging one, and shares more ground with the ideas of community development and co-production than PPI.

Community Development

Community development is the grass roots approach to strengthening and empowering groups of people (geographical or common interest based) to take action to improve their environment, health, education and/or local services.  It takes time and patience and is usually facilitated by community development workers who are embedded in the community, or local people who advocate for their community and might receive training and support.  It requires good relationship development and transparent exchange of information.  Fashionable many years ago for improved public health, it faded, in favour of the ‘personal health’ agenda of the 80’s and 90’s.  It would seem that it is back in favour with the Cabinet Office hosting a Community Development Exchange http://www.cdx.org.uk/  and a plethora of events and conferences discussing how the division of power can be change in favour of communities and initiatives such as the Neighbourhood Challenge  http://www.nesta.org.uk/areas_of_work/public_services_lab/neighbourhood_challenge

Co production

Co production, a term coined in relation to community work with police in Chicago in the 1970’s has been picked up in the UK by the organisations such as the King’s Fund and the Institute for Policy Research.  Its central theme is relationships between service providers/planners and service users – good relationships beget the co production of services/policy that is more effective for both parties.
It assumes that service users are not passive recipients but people with views, ideas and experiences that can contribute to the development of a service.  Professionals need to learn to accept user expertise, and the emphasis is on real relationships and partnerships.  This investment in relationships suggests better outcomes and results, neatly depicted by the diagram below:

http://www.kks.se/templates/StandardPage.aspx?id=5847
An interesting example of UK co production is “An exploration of ‘co-production’ – partnerships between public sector professionals and community members, in particular those outside paid employment”.  Available on the Joseph Rowntree Foundation website:
http://www.jrf.org.uk/publications/co-production-people-outside-paid-employment
So, do we detect a shift back to working with groups rather than individuals?  Is the focus on developing sustainable relationships rather than involvement on a project by project basis?

Is there room for PPI, community development and co production? 

  Yes of course!  They are all a means to the same end – the harnessing of a range of expertise on a problem, be it a research project, developing a service to relocating a school.   What they all share are some founding principles of equality of relationship, transparency of purpose and method, and respect for different experience and expertise.  So let’s not get hung up on definitions and models but find what works best for your community, your project, your relationships – variety is the spice of life!

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