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PRIME Project
14 January 2010
News > Patient/public involvement
PRIME stands for Partnership for Research in ME/CFS, and has pioneered a novel way of collecting and making accessible patient experience data, go to www.prime-cfs.org to search the database and read the stories.
Warwick University have completed an 'icast' of the project, which consists of researchers, clinicians and people with ME/CFS talking about the condition and reflecting on the PRIME Patient Experience Database.
Our current focus is writing articles on the results of the project for several research journals and for ME/CFS charity newsletters. The results of the Patient Reported Outcome Measures has been presented at two conferences and a paper recently finalised.
Whilst the PRIME project receives no current funding several of the original team continue to keep the website up to date and are part of other related ME/CFS projects.
