Recent publications

Patient and public involvement—“A smooth sea never made a skilled sailor”

Concannon TW, Grant S, Welch V, Petkovic J, Selby J, Crowe S, Synnot A, Greer-Smith R, Mayo-Wilson E, Tambor E, Tugwell P. Practical guidance for involving stakeholders in health research. J Gen Intern Med 2019;34(3):458–63. Epub ahead of print (with supplemental materials) 10.1007/s11606-018-4738-6.

Experiences and lessons in stakeholder engagement in environmental evidence synthesis: a truly special series Haddaway and Crowe Environ Evid (2018) 7:11

‘Who Inspired My Thinking? – Sherry Arnstein’. Crowe S, Research for All, 1 (1): 143-146. DOI 10.18546/RFA.01.1.10. (2017)

Research Priority Setting in organ transplantation: a systematic review. Tong A. Sautenet B, ChapmanJR, MacDonald P, Shackel N, Crowe S, Hanson CS, Hill S, Synnot A, Craig J.  Transplant International 30(4), 327-343.

Making patient relevant clinical research a reality Crowe S, Giles C BMJ 2016; 355 doi: (Published 23 December 2016) Cite this as: BMJ 2016;355:i6627

Nephrologists’ perspectives on defining and applying patient-centered outcomes in hemodialysis. Tong A, Winkelmayer WC, Wheeler DC, Van Biesen W, Tugwell P, Manns B, Hemmelgarn, Harris T, Crowe S, Ju A, O’Lone E, Evangelidis N, Craig JC. Clinical Journal of the American Society of Nephrology [Accepted 3rd November 2016]

Determining priorities for research to improve fundamental care on hospital ward Ball Jane, Ballinger Claire, De Iongh Anya, Dall’Ora Chiara, Crowe Sally, Griffiths Peter, Research Involvement and Engagement 2016, 2:31 DOI: 10.1186/s40900-016-0045-8

Identifying the most important outcomes for systematic reviews of interventions for rhinosinusitis in adults: working with Patients, Public and Practitioners.
Hopkins C, Philpott C, Crowe S, Regan S, Degun A, Papachristou I, Schilder AG.
Rhinology. 2015 Nov 15. [Epub ahead of print] PMID: 26569006

Standardised outcomes in nephrology – Haemodialysis (SONG-HD): study protocol for establishing a core outcome set in haemodialysis
Allison Tong • Braden Manns • Brenda Hemmelgarn • David C Wheeler • Peter Tugwell • Wolfgang C Winkelmayer • Wim van Biesen • Sally Crowe • Peter G Kerr • Kevan R Polkinghorne •Kirsten Howard • Carol Pollock • Carmel M Hawley • David W Johnson • Stephen P McDonald • Martin P Gallagher • Rachel Urquhart-Secord • Jonathan C Craig Trials 08/2015; 16(1):364. DOI:10.1186/s13063-015-0895-7 • 2.12

Assessing the extent to which current clinical research is consistent with patient priorities: a scoping review using a case study in patients on or nearing dialysis. Jun M, Manns B, Laupacis A, Manns L, Rehal B, Crowe S, Hemmelgarn BR (2015). Canadian Journal of Kidney Health and Disease. Vol 2 Issue1. 2015

Missed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority setting. Snow R, Crocker JC, Crowe S Research Involvement and Engagement Journal July 2015 1845655987160084

Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch. Crowe, S. Fenton, M. Hall, M. Cowan K. and Chalmers I. (2015) Research Involvement and Engagement 2015 1:2