Sally facilitated the inaugural meeting of the International Patient and Public Involvement Network in late 2017, momentum is gathering with a plan to;
….create a social movement globally, changing the paradigm, content and nature of research, so that embedded collaboration between patients, clinicians and researchers focuses on answering key questions in ways that create the most benefit for patients. As Heraclitus stated, “big results require big ambitions.”
An update on progress and developments is here
Since 2016 Crowe Associates have been working with a UK wide Partnership of representatives from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency of Northern Ireland and the National Institute for Health and Research (England) to develop a set of standards for public involvement in research. They were tested (between 2018 – 2019) by a diverse group of 10 research organisations and collaborations.
The revised and completed UK Standards for Public Involvement are now available. A booklet of ‘Implementation Stories’ will be available in Spring 2020.
Crowe Associates and Third Opinion have been working with DeepMind Health to help realise their aspirations to work with patients and the public in developing applied technology in healthcare. This work has included workshops, discussion groups and setting up the DeepMind Health User Group, a video gives a taster of developments.
A new James Lind Alliance Research Priority Setting Partnership has started and we invite people to take part.
Who can take part?
Patients, carers, and healthcare professionals. If you have (or have had), or are caring for someone who has (or has had) early stage osteoarthritis (OA), or work as a health or social care professional with people who have (or have had) early stage OA….we want to hear from you.
Why should I take the survey?
This exciting initiative will be overseen by The James Lind Alliance, a non-profit making organisation funded by the National Institute for Health Research, ensuring the exercise produces an unbiased result, with equal weighting given to the views of the different participating groups. So whether your interest is personal or professional …your opinions will count.
How do I take part?
The survey is available at http://tiny.cc/3d71vx or contact the James Lind Alliance Project Manager at the Oxford Biomedical Research Centre to request a paper version (tel / voicemail 01865 223298, e-mail firstname.lastname@example.org).
Every year, about 150,000 hip and knee replacements are done in the UK because of osteoarthritis. But we still don’t know enough about which patients benefit most, when is the best time for surgery and how do we ensure that patients recover quickly and well?
A James Lind Alliance Priority Setting Partnership gathered research uncertainties from a wide range of people with osteoarthritis and health professionals that treat and look after them. There were prioritised using a James Lind Alliance approach and the results and process to achieve the Top Ten Research Priorities are detailed in this report.
Crowe Associates have piloted and delivered a new workshop for Yorkshire Research Design Service in May 2013. The combination of interactive and information sharing enabled researchers to explore and appraise different approaches to prioritisation and stakeholder engagement. Continue reading