Sally facilitated the inaugural meeting of the International Patient and Public Involvement Network in late 2017, momentum is gathering with a plan to;

….create a social movement globally, changing the paradigm, content and nature of research, so that embedded collaboration between patients, clinicians and researchers focuses on answering key questions in ways that create the most benefit for patients. As Heraclitus stated, “big results require big ambitions.”

An update on progress and developments is here 

Since 2016 Crowe Associates have been working with a UK wide Partnership of representatives from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency of Northern Ireland and the National Institute for Health and Research (England) to develop a set of standards for public involvement in research. They were tested (between 2018 – 2019) by a diverse group of 10 research organisations and collaborations.

The revised and completed UK Standards for Public Involvement are now available.  A booklet of ‘Implementation Stories’ will be available in Spring 2020.

Crowe Associates and Third Opinion have been working with DeepMind Health to help realise their aspirations to work with patients and the public in developing applied technology in healthcare.  This work has included workshops, discussion groups and setting up the DeepMind Health User Group, a video gives a taster of developments.